My recent request for help to support a family by paying for their $115 per night housing expense for 2 months may have left some feeling a little uncomfortable. I am ok with that. I want you to question. I want you to ask why. And how. We desire to meet your needs for transparency so we can better meet the needs of the families UJE supports.
So, let’s talk money.
I don’t have the exact numbers in front of me, but I have a general memory of the expenses our family incurred during our medical crisis away from home.
Our son, Isaac, was hospitalized from July 15-December 4 of 2007—almost 5 months. My husband stayed home to take care of our home and pets and continued working while my 2-year-old daughter and I traveled about 400 miles to be with our son who was in the NICU. Jason would travel to visit us when time and money were available, usually 2-3 weekends per month. Friends back home managed our lawn care, provided a few meals for Jason, helped with pet care, and completed a home improvement project during our medical journey. My first month away from home, I lived in a hotel. They graciously agreed to lower our daily rate to $80/night. The lodging total for that month was approximately $2400 (this total does not include taxes, etc. I recall our hotel bill was over $3000). Food for the first month was generally not free. The hotel did reduce their meal prices and provide me with free coffee, but for the most part, we payed for every meal, everyday. We also had to pay for parking while at the hotel but I don’t remember how much that was.
The next month, a couple whom we had never met before invited us to live with them in their home, only minutes from the hospital. The second month’s lodging was free. Meals for the second month were generally free. At their home I had a place to store and prepare food and we often shared meals with the family we were living with.
The beginning of the third month, Isaac was transferred to another hospital. We moved again, this time to a Ronald McDonald House (RMH). We lived there until Isaac was discharged—about 3 months. The lodging total for the last three months was approximately $2250. The hospital provided a shuttle to and from the RMH so I usually used that, instead of paying for parking at the hospital. The RMH provided supper most nights—all of those were free. And, we had a kitchen again so we were able to prepare some of our meals. I prepared breakfast for my daughter and I every morning before heading to the hospital but lunch was usually at the hospital cafeteria.
Meals, gasoline, health and beauty items, groceries and parking totaled approximately $3350. This number is based on my recollection that we spent about $8000 total during our 5 months away from home. Of course, this total was in addition to our normal living expenses back home. And, while it was not an easy decision to be apart from each other, Jason staying home and working allowed us to pay all of our normal living expenses. Unfortunately, like most families, we did not expect this long distance medical crisis and all of our away-from-home expenses were charged to our credit card.
In terms of medical expenses, we were very fortunate. Our son’s medical bills were well over 1 million dollars. Because of Medicaid and my husband’s medical insurance, we did not pay a single penny.
I share our financial journey with you to give you an idea of the varied expenses a family we support might incur. Of course, every family’s long distance medical journey is unique. Each family we serve receives support tailored to their particular needs. Housing and transportation especially, vary greatly from family to family, city to city. And people have jobs that pay various salaries and offer different insurance. Some people have no job at all. Some people are 3 hours from home and can drive to visit their spouse and hospitalized loved one. Some people are 12 hours from home and must fly back and forth. Or not visit much at all. Some families have to live away from home in Ohio; other families have to live away from home in Washington DC where expenses are much higher. Some families have reliable transportation, others do not. And the list goes on.
Until Journey’s End supports families living away from home to be with a loved one in medical crisis until their journey ends by meeting each family’s unique needs. Because of our Board of Director’s collective experience and understanding of a long distance medical crisis, we can gauge a prospective family’s need. When possible, we talk directly with family members and close friends of our families to determine exact needs. We read blog updates and ask questions. We take seriously the trust bestowed on us by our supporters and donors. At the same time, when God places a family and their unique circumstances on our doorstep, we have to act. And, we have to enlist your help. Because alone, these journeys are sometimes nearly impossible to recover from. With your help, UJE can meet the needs of the families God has set before us. And honestly, I can’t think of anything more rewarding.